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End of Life (EOL)

Aging with Dignity Five Wishes https://agingwithdignity.org/programs/five-wishes/

Alameda County Care Alliance (ACCA) Advanced Illness Care Program (AICP) 

https://www.care-alliance.org/care-planning-workbook

American Bar Association Health Care Decision-Making Resources https://www.americanbar.org/groups/law_aging/resources/health_care_decision_making/

ABA Health Care Planning Guide and Tools

https://www.americanbar.org/groups/law_aging/resources/health_care_decision_making/Advanceplanningresources/

ABA Toolkit for Health Care Advance Planning https://www.americanbar.org/content/dam/aba/administrative/law_aging/2020-tool-kit-hcap.pdf

American Clinicians Academy on Medical Aid In Dying https://www.acamaid.org/patientbooklet/

Beacon Light Doulas https://beaconlightdoulas.com/

CA End of Life Option Act https://www.cdph.ca.gov/Programs/CHSI/Pages/End-of-Life-Option-Act-.aspx

Center to Advance Palliative Care https://getpalliativecare.org/resources/

Centre for Art of Dying Well https://www.artofdyingwell.org/

Chinese American Coalition for Compassionate Care https://caccc-usa.org/en/resources/index.html

Coalition for Compassionate Care of California 

https://coalitionccc.org/CCCC/CCCC/Resources/Tools-and-Resources.aspx

Compassion & Choices Dementia Values & Priorities Tool https://www.compassionandchoices.org/dementia-values-tool

Compassion & Choices EOL Planning https://www.compassionandchoices.org/end-of-life-planning

My End-of-Life Decisions: An Advance Planning Guide and Toolkit - Compassion & Choices

Who will speak for you? A guide to choosing a healthcare proxy - Compassion & Choices

The Conversation Project https://theconversationproject.org/

https://theconversationproject.org/wp-content/uploads/2020/12/WhatMattersToMeWorkbook.pdf

Dartmouth Dementia Directive https://sites.dartmouth.edu/dementiadirective/

Death Cafe https://deathcafe.com/

Death over Dim Sum https://deathoverdimsum.org/

Death over Dinner https://deathoverdinner.org/

Death with Dignity https://deathwithdignity.org/

Doulagivers Institute https://www.doulagivers.com/free-resource-page/#planningahead

End Well Project https://endwellproject.org/

EOL Choices California https://endoflifechoicesca.org/

Final Exit Network (FEN) https://finalexitnetwork.org/

FEN Good Death Society Blog https://www.thegooddeathsocietyblog.net/

Five Wishes https://www.fivewishes.org/resources/

National Center for Death and Dying Resources https://www.deathanddyingresources.org/

National Center for Lesbian Rights Lifelines: Documents to Protect You & Your Family

https://www.nclrights.org/wp-content/uploads/2013/04/Resources_Lifelines.pdf

NIA Getting Your Affairs in Order

https://www.nia.nih.gov/health/advance-care-planning/getting-your-affairs-order-checklist-documents-prepare-future

Order of the Good Death https://www.orderofthegooddeath.com/

Plan Your Lifespan http://www.planyourlifespan.org/

Reimagine https://letsreimagine.org/resources

Seven Ponds After Death Planning Guide https://www.sevenponds.com/after_death_planning_guide 

SF Network for EOL Care https://sfeol.org/

SF Palliative Care Work Group

https://www.sfpcwg.org/news-publications/pdf/PCWG23-001_LearningJourneyNewReport_FINAL_digital.pdf 

Stanford Letter Project https://med.stanford.edu/letter.html

https://chrispalmeronline.com/death-dying

​​

Advance Directives

U.S. Advance Care Plan Registry (formerly U.S. Living Will Registry) https://www.usacpr.com/

Free Advance Directive Forms by State from AARP

https://www.caringinfo.org/planning/advance-directives/by-state/

State-by-State Advance Directive Forms | Everplans

Write Your Legal Will Online, Free & Simple | FreeWill

Advance Care ​Planning Workbook for People with Developmental Disabilities – Thinking Ahead: My Life at the End (2022) https://coalitionccc.org/CCCC/CCCC/Resources/People-With-Developmental-Disabilities-Resources.aspx

Advance Directive for Dementia https://dementia-directive.org/

Advance Directive for VSED https://www.washingtonlawhelp.org/resource/vsed-directive

Advance Planning: Overview for Advocates 

https://ncler.acl.gov/getattachment/Legal-Training/upcoming_event/Advance-Planning-Ch-Summary.pdf.aspx?lang=en-US

California Psychiatric Advance Directive (PAD) https://nrc-pad.org/states/california/

California Statutory Advance Health Care Directive https://oag.ca.gov/system/files/media/ProbateCodeAdvanceHealthCareDirectiveForm-fillable.pdf

Medline Plus Advance Directives https://medlineplus.gov/advancedirectives.html

National Institute on Aging Advance Care Planning 

https://www.nia.nih.gov/health/advance-care-planning/advance-care-planning-advance-directives-health-care

PREPARE for Your Care - Easy to Read California Advance Health Care Directive https://prepareforyourcare.org/en/advance-directive

Kaiser Permanente California Advance Health Care Directive

https://healthy.kaiserpermanente.org/northern-california/health-wellness/life-care-plan/advance-health-care-directive

Sutter Health Advance Health Care Directive

https://www.sutterhealth.org/for-patients/advance-health-care-directive

​UCSF Advance Health Care Directive Kit

https://www.ucsfhealth.org/your-hospital-stay/advance-directives

Uniform Statutory Form Power of Attorney https://file.lacounty.gov/SDSInter/dca/1021444_4.18.17_UniformStatutoryFormPowerofAttorney.pdf

https://www.smclawlibrary.org/Forms/DurablePowerOfAttorney.pdf

https://saclaw.org/resource_library/power-of-attorney/#basic_types_of_powers_of_attorney

California Power of Attorney Laws | California POA | Nolo

Physician Orders for Life-Sustaining Treatment (POLST)

https://polst.org/programs-in-your-state/

https://capolst.org/

Hospice

American Hospice Foundation (AHF, closed 2014) https://americanhospice.org/

California Hospice & Palliative Care Association (CHAPCA) https://www.calhospice.org/

CMA Hospice https://medicareadvocacy.org/medicare-info/medicare-hospice-benefit/

https://medicareadvocacy.org/wp-content/uploads/2022/12/Questions-for-Choosing-Hospice-Care-2022-Final.pdf

Hospice Foundation of America (HFA) https://hospicefoundation.org/

HFA What is Hospice https://hospicefoundation.org/hfa/media/Files/What-is-hospice.pdf 
HFA Choosing Hospice

https://hospicefoundation.org/End-of-Life-Support-and-Resources/Coping-with-Terminal-Illness/How-to-Choose/Questions-to-ask

Medicare Hospice Care https://www.medicare.gov/coverage/hospice-care

https://www.cms.gov/medicare/payment/fee-for-service-providers/hospice

Medicare Hospice Compare https://www.medicare.gov/care-compare/?providerType=Hospice 
Medicare Hospice Checklist
https://www.medicare.gov/care-compare/en/assets/resources/hospice/HospiceChecklist-Final-Clean.pdf
Medicare Hospice – Getting Started https://www.medicare.gov/publications/11361-medicare-hospice-getting-started.pdf

https://www.cms.gov/Medicare-Medicaid-Coordination/Fraud-Prevention/Medicaid-Integrity-Program/Education/Resource-Library/hospice-booklet-beneficiaries

National Alliance for Care at Home https://allianceforcareathome.org/find-a-provider/

National Association for Home Care & Hospice (NAHC) https://nahc.org/

https://nahc.org/wp-content/uploads/2022/12/Questions-for-Choosing-Hospice-Care-2022-Final.pdf

National Hospice & Palliative Care Organization (NHPCO) 800-646-6460 https://www.nhpco.org/

NHPCO Choosing a Hospice https://www.caringinfo.org/types-of-care/hospice-care/choosing-and-finding-hospice-care/
Medicare Hospice Benefit for Alzheimer’s 

https://www.alz.org/getmedia/4d551ed8-8a02-4280-be33-15edd54782a7/alzheimers-dementia-medicare-hospice-benefit-ts.pdf

Medicare Interactive https://www.medicareinteractive.org/get-answers/medicare-covered-services/hospice 
UHF Next Step in Care https://www.nextstepincare.org/Caregiver_Home/Hospice 

Medicaid Hospice https://www.medicaid.gov/medicaid/benefits/hospice-benefits/index.html

Medi-Cal Hospice https://www.dhcs.ca.gov/services/medi-cal/Pages/Hospice-Information.aspx

Hospice Nurse Julia https://www.hospicenursejulie.com/ 

Preying on the Dying: Private Equity Gets Rich in Hospice Care - Center for Economic and Policy Research

Find hospice care https://www.aging.ca.gov/Care_Options/Hospice_Care/

https://www.cdph.ca.gov/Programs/CHCQ/LCP/CalHealthFind/Pages/SearchResult.aspx

By the Bay Health 415- 626-5900 https://bythebayhealth.org/btbh-hospice-care/   

Kaiser Hospice 415-833-3655 https://hospice-ncal.kaiserpermanente.org/

Pathways Home Health & Hospice 888-755-7855 https://pathwayshealth.org/hospice/

Self-Help for the Elderly 415-677-7628 https://www.selfhelpelderly.org/our-services/health-and-home-care/hospice-care

Sutter Care at Home 866-652-9178 https://www.sutterhealth.org/services/home-health-hospice-locations

AARP Wish of a Lifetime https://wishofalifetime.org/ grants life-changing wishes to older adults and inspires people to redefine aging in America. Eligibility: age 65+, resident of U.S. and its territories, unable to fulfill the wish on your own, capable of experiencing the wish, able to obtain approval from a doctor, if necessary.

Dream Foundation https://www.dreamfoundation.org/dream-program/ Eligibility: resident of U.S. or Puerto Rico, age 18+, diagnosed with a life limiting illness with a life expectancy of 12 months or less, and lack the resources to fulfill the Dream themselves.

Give A Mile https://giveamile.org/ provide flights to people wishing to visit their terminally or critically ill loved ones.

Threshold Choir https://thresholdchoir.org/SanFrancisco/​​

Tips for Family Caregivers Coping with EOL Care 

https://yournurseadvocateconsulting.com/2024/10/tips-for-family-caregivers-coping-with-end-of-life-care/

 

Death Services

California Cemetery and Funeral Bureau https://www.cfb.ca.gov/

Consumer Guide to Funeral and Cemetery Purchases https://www.cfb.ca.gov/consumer/funeral.shtml

Dignity Memorial Insider’s Guide to Funeral & Cremation Planning https://plan.dignitymemorial.com/guide-download/organic/

Doulagivers find death doula https://www.doulagivers.com/portfolio-category/california/

Perspectives from Death Doulas: Learn how a death doula can add value to your end-of-life care team

https://www.nextavenue.org/how-a-death-doula-can-help-patients-and-families/

https://www.nextavenue.org/solo-ager-hired-a-death-doula/

Duggans Serra Personal Planning Guide https://www.duggans-serra.com/preplan/free-personal-planning-guide

Earth Funeral https://earthfuneral.com/san-francisco-ca/            

Everplans Funeral Planning https://www.everplans.com/funeral-planning

Fernwood Natural Burial, Green Cemetery https://lp.fernwood.com/

FTC Shopping for Funeral Services https://consumer.ftc.gov/shopping-funeral-services

Funeral Consumers Alliance https://funerals.org/ 

FuneralWise resources https://www.funeralwise.com/resources/

Garden Chapel Funeral Pre-Planning Checklist https://www.gardenchapel885.com/funeral-pre-planning-checklist

Earth Funeral https://earthfuneral.com/ 

MetLife Funeral Planning Guide (2022) https://eforms.metlife.com/wcm8/PDFFiles/30517.pdf

National EOL Doula Alliance https://www.nedalliance.org/

National Home Funeral Alliance https://www.homefuneralalliance.org/

Neptune Society cremation resources https://www.neptune-society.com/resources/

Pacific Interment https://interment.com/

SF Columbarium & Funeral Home https://services.sfcolumbariumfuneralhome.co/

Tulip Cremation https://www.tulipcremation.com/articles/tulip-expert-guides.html

Funeral & Burial Assistance

Ask a Mortician (Caitlin Doughty) https://www.youtube.com/@AskAMortician/playlists

California Victim Compensation Board (CalVCB) funeral & burial benefits for deceased victim https://victims.ca.gov/for-service-providers/funeral-burial-service-providers/
Entertainment Community Fund Funeral & Burial Assistance - Western Region 323-330-2455 https://entertainmentcommunity.org/services-and-programs/funeral-burial-assistance 
Free Cremation Urns

https://www.funeral-urn.com/cremation-urns/urns-for-ashes/clearance-and-sale-cremation-urns.html?product_list_order=price 

Find Federal Benefits After Losing a Loved One (usa.gov)
FEMA COVID-19 Funeral Assistance Helpline 844-684-6333 https://www.fema.gov/disaster/historic/coronavirus/economic/funeral-assistance 
Social Security Special Lump Sum Death Payment (LSDP $255) to surviving spouse/dependent https://www.ssa.gov/benefits/survivors/ifyou.html#h7
SSI Prepaid Burial Fund https://www.ssa.gov/ssi/spotlights/spot-burial-funds.htm 
Veterans burial allowance https://www.va.gov/burials-memorials/veterans-burial-allowance/

8 Things You Didn't Know About VA Burial Benefits (aarp.org)

Ways You Can Save Money on Funeral Costs

What Are The Cheapest Burial Options? | Ever Loved

Indigent Cremation https://medicalexaminer.sccgov.org/indigent-cremation

https://sfstandard.com/2024/03/18/san-francisco-unclaimed-dead-ashes-scattering/

UCSF Willed Body Program 415-476-1981 https://meded.ucsf.edu/willed-body-program

https://www.organdonor.gov/

Financial checklists after death

What to Do When a Loved One Dies: Practical steps you need to take in the early days

https://www.aarp.org/home-family/friends-family/info-2020/when-loved-one-dies-checklist.html

Family Caregiving Doesn't End When the Recipient Dies: These steps can lessen the workload

https://www.aarp.org/caregiving/financial-legal/info-2020/when-care-recipient-dies.html

Financial steps to follow after the loss https://money.usnews.com/money/personal-finance/family-finance/articles/financial-steps-to-follow-after-the-loss-of-a-loved-one

https://hospicegiving.org/wp-content/uploads/2017/12/When-Someone-Dies-Checklist_Nov-2017_interactive.pdf

Obituary scams https://www.aarp.org/money/scams-fraud/obituary/

Order death certificate https://www.sf.gov/get-san-francisco-death-certificate

https://www.cdph.ca.gov/Programs/CHSI/Pages/Vital-Records-Obtaining-Certified-Copies-of-Death-Records.aspx 
Statement of Death by Funeral Director https://www.ssa.gov/forms/ssa-721.pdf 

Grief & Bereavement Support

By the Bay Grief Support https://bythebayhealth.org/grief-support/

Institute on Aging Grief Services 

https://www.ioaging.org/services/all-inclusive-health-care/psychological-services/center-for-elderly-suicide-prevention/grief-services/

JFCS Grief & Bereavement Counseling https://www.jfcs.org/find-help/adults-families/grief-and-bereavement/

Pathways Home Health Grief Resources https://pathwayshealth.org/resources/

Sutter Health Grief Support https://www.sutterhealth.org/services/home-health-hospice/grief-bereavement-support

Evermore Grief Support https://evermore.org/grief-support-directory/

Picking Up the Pieces After the Person You Have Been Caring for Dies | The Caregiver Space

https://www.agingcare.com/articles/caregiving-ending-after-death-148071.htm

Life expectancy

Actuaries Longevity Illustrator https://www.longevityillustrator.org/Profile

BBC How long are you going to live? https://www.bbc.com/news/health-44107940

Blueprint Income https://www.blueprintincome.com/tools/life-expectancy-calculator-how-long-will-i-live/

Goldenson Healthy Life Expectancy Calculator https://apps.goldensoncenter.uconn.edu/HLEC/

John Hancock Life Expectancy Calculator https://www.johnhancock.com/life-insurance/life-expectancy-calculator.html

Living to 100 (requires sign-in) https://livingto100.com/calculator

Northwestern Mutual Lifespan Calculator https://media.nmfn.com/tnetwork/lifespan/index.html

Robert Wood Johnson Foundation Life Expectancy by zip code https://www.rwjf.org/en/insights/our-research/interactives/whereyouliveaffectshowlongyoulive.html

Social Security Life Expectancy Calculator (gender, DOB) https://www.ssa.gov/OACT/population/longevity.html

EOL Radio Project produced by JoAnn Mar http://endofliferadio.org/home.html

© 2022 by Gerontologist Carmen.  Created with Wix.com

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